This is Halloween!!

Halloween is coming up next week and I am thinking about going as a powerranger :) What is everybody going as?? is there anything special planned?? I hope y'all get a lot of candy and have lots of fun..but not too much fun!! hahahaha :) if you have a halloween costume you would like me to share of you, your children, or pets or even embarassing halloween pics that you would like me to share email me at kjcole8@gmail.com :)

Be The Match :)

Hey Guys :) how are y'all doing on this beautiful day?? I know I have not blogged in a while :( I saw this story A couple of months ago when a woman found out she had cancer and she needed surgery to save her life :( They found a match for her thankfully and she wanted to meet the person who saved her life :) all she knew was that her donor was a man and his age, but she wanted to know more :) They went on national TV on Good Morning America and she finally met the man who saved her life who she calls "her hero" it was very emotional for me and I thought to myself that I wanted to help someone like this man did and make a difference in someone's life. That night I went on BeTheMatch.com and registered, about a week and a half later I got a kit in the mail complete with 4 long cotton swabs, directions, scanner stickers, and a envelope to mail them back. I mailed them out as soon as I could and almost 3 months went by and I did not hear anything from them and I was checking my email not too long ago and I saw a email from Be The Match, I became really excited and I read it and they told me that I was on the registry and that I should be receiving a card in the mail in about a month. I am so excited and I wanted to share this special moment with you :)

Inspirational Turner Sister Sydney Mancini

I just watched this on youtube and lemme tell you...Sydney story really touched me...I love that Sydney is not scared to ask questions and so strong at only 7 years old!! It really touched me when her mom almost started crying and that she had to have heart surgery almost immediately after she was born!!! Sydney is an inspiration :)if you would like to watch her story here is la link :) http://www.youtube.com/watch?v=JQ0Cj2-o24Q&feature=related

20,000 Views!!!!

Hello there friends! I Just would like to thank all of you for the support, you are all amazing and I cherish every single one of you :) I am going to try to keep the site updated as much as possible cause I love you :) Here's me giving you a mind hug :) 20,000 views!!!! I cannot believe it!!! Thank you sooo much!

July Events

July 14- Grand Haven MI-Annual Beach Party- Grand Haven State Park (Meet at Mcdonald's On 5371 Lake Michigan Drive if you are planning to carpool at 10am) @ 11am for questions contact host Mary Ohler at maohler@att.net, July 16- Springfield MO- Meet and Greet-Hebrew's Coffee on 1604 E. Republic RD @ 7pm, July 20 to 22- Annual Turner Syndrome Conference- Anaheim CA- Hyatt Regency Orange County Hotel.

The Countdown Begins....

Hey Everybody...Long time no see :( Only ten days left until the 25th Anniversary Conference in Anaheim California....This year's theme is "Get Your Princess On" Which in my opinion is a great idea! I think all of my turner sisters are beautiful princesses and they should be treated like one :) Let me know if any of you are attending the conference I'm going to try to attend so maybe i'll get to meet some of you :D

June Events :P

6/2- Philadelphia,PA; TS program by CHOP at 8:30am to 2:30pm (please visit webisite :D ) and 6/24- Houston, TX chapter event....If there are any more June events that come up I'll make sure to keep you posted :)

May Events.....

5/5- Ohio Chapter Educational Meeting, 5/12- North Carolina Chapter Meeting, 5/12- West Michigan Chapter Meeting, 5/12- New York Event, 5/19- Southern California Mini Conference, 5/20- Central Texas Support Group Meeting, 5/27- Pennsylvania Fundraiser For TSSUS

2013 Conference :) Any Guesses???

The 2013 TSSUS conference is on July 12-14, 2013 :) The TSSUS has been giving out clues on their facebook and also the newsletters to help guess on where the location is and lemme tell you I am very curious about where it is going to be.

March Of DImes Michigan Events'

Hey everybody...If you live in Michigan and would like to walk for premature babies in the March Of Dimes walk just register at marchforbabies.org and here is a list of all of the events in Michigan :)This is a great cause and I hope that all you Michiganders out there can make it to one of these events. I also made a team which I posted about already if you would like to join just lemme know :) I would really appreciate this!! I love you all so much!! Have a great day everybody!! 4/14 Holland-Centennial Park @ 9 am, 4/22 Monroe- Wm. C. Sterling State Park @ 12pm, 4/28 Grand Rapids- Farmers Campus, Caledonia @ 10:30am, 4/28 Hines Park-Nankin Mills @ 9am, 4/28 Lansing- Riverfront park @ 10am, 4/28 Lapeer- Rowden Park @ 10am, 4/29 Ann Arbor- Hudson Mills Metropark @ 10am, 4/29 Battle Creek- Binder Park Zoo @ 10am, 4/29 Detroit- Wayne State University @ 9am 4/29 Genesee County- Bicentennial Park @ 10am, 4/29 Jackson- Ella Sharp Park @ 2pm, 4/29 Livingston- Kensington Metropark @ 9am, 4/29 Metro Beach- Metropark Plaza Area @ 9am, 4/29 Troy- Somerset Collection Mall @ 10am, 5/5 Barry County- Fish Hatchery Park, Hastings @ 9am, 5/5 Kalamazoo- Celery Flats Historical Area @ 10am, 5/5 Midland- Plymouth Park @ 10am, 5/5 Muskegon- Heritage Landing @ 9am, 5/5 Traverse City- Grand Traverse Cty. Civ.Ctr @ 9am, 5/6 Bay City- Boys And Girls Club @ 10am, 5/6 Blue Water River- St. Clair Co. Comm. College @ 10am

Veronica Rake Story!!

I just read this cute article about this 9 year old girl named Veronica Rake and how she was diagnosed with Turner Syndrome and The problems she faces on a daily basis...Veronica is a very strong and intelligent girl who can read at a 6th to 7th grade reading level in only 3rd grade!!! and also taught herself spanish by watching Dora The Explorer <3 if you would like to read the full article here's the link...http://m.journaltimes.com/lifestyles/health-med-fit/turner-syndrome-girl-highlights-need-for-awareness-earlier-diagn

osis/article_da2f38a4-67c9-11e1-89d5-0019bb2963f4.html

March Of Dimes Walk!!!

Hey everybody!!! sorry I haven't blogged in a while...I hope everybody had a great St. Paddy's day yesterday!! I am doing this walk for Premature babies and I created my own team and everything...I am REALLY REALLY excited about this!!! If you live in Michigan and would like to walk it is on April 29th at 9 Am at Binder Park Zoo in Battle Creek :)Or If you would just like to donate my page is http://www.marchforbabies.org/personal_page.asp?si=5E3E36C2-D9D9-46FE-845A-86894C7F75CB I would highly appreciate this sooo much!! i'm going to try updating the blog as much as possible :) I apologize to all of you :( i'm such a slacker!!! hahaha

Turner Syndrome Awareness Month Is Almost Here!!!

Hey all of me beautiful sisters..It is almost Febuary and you all know what that means....??? TURNER SYNDROME AWARENESS MONTH!!! The TSSUS is selling the 2012 awareness shirts on their webstore now!!! They are really cute!! They are $18 I think the same price as last year.. :D

Turner Syndrome Events

Here are some events scheduled for this month..come join if u see one that is close to u!! :) Jan 12: West Michigan Chapter gathering @ Aquinas college libary, 7pm/ Jan 27: NE Oklahoma support group meeting @ Tulsa Schusterman Center (room 137) 6-8 PM /Jan 28: Central Texas Support Group Meeting @ Scott and White conference Center, 2-4 pm /Jan 29: Colorado area educational event @ 51 Grape Street, 1:30-4:40 pm

Here The Facts!!

I found these facts about Turner syndrome and I found them very interesting!! *There are over 71,000 women and girls living with TS across the United States. *The average adult height of a woman with Turner syndrome is 4’8” *10% of all miscarriages are due to Turner syndrome *about 1% of fetuses with only one X chromosome survive to term *The syndrome is named after Dr. Henry Turner *The symptoms were discovered in the 1930s

2012 Is Finally Here!!!!

Hey Everybody, I hope everybody had a safe holiday and got everything you wanted and more :) hehehe.. 2012 is finally here and one of my resolutions is to update the blog much more than I have been doing :( thank you all soooo much for your support it means a lot to me!! What are some of your resolutions?