TS Card exchange!!!

About a month ago I was invited to an event by Sara L. where Ts sisters can exchange christmas with eachother and I thought it was a great idea....so I participated and I have recieved a few cute cards from my TS sisters. Maybe it can become a tradition!! :D

New website!!

hey everybody!!! sorry i haven't blogged in a while....But, I would like to inform all of you that i decided to revamp and make a new website!!!! I am starting on it today and when I finish it I will give all of you the link. :D

Walk to raise Awareness for Turner Syndrome

I was invited to an event by another Turner girl called Walk to raise awareness for Turner's syndrome. It was created by Mark Phillippe and Kimberly Mills Farmer and Mark's 30 month old daughter has Turner syndrome and a young lady wanted to do something and they came up with an idea in having a walk to raise awareness for Turner's syndrome. If you live in Georgia (especially Woodstock!!!) you should check it out!!!

Event: Walk to raise awareness for Turner's Syndrome
Date: November 13th
Time: 11 a.m to 4 p.m
Location: Woodstock high school
Price: no fee to walk, but donations will be accepted

For more information go to www.walkforferrial.com or contact Mark. phillippe72@gmail.com

Turner's Syndrome- Documentary short!!!

I just watched this and I thought it was amazing....It's a story about a woman with Turner syndrome and all of the wonderful things that happened in her life :D

Pediatric diagnosis brochure

I found this on the Turner syndrome society of the united states' website!!! (oh, yeah they also re-did their site lol i've been meaning to post that but I forgot!!)

The Movement

About two weeks ago I went to an event for my youth group called the movement. I really wanted to be a leader and get closer to God so I decided to go. The pastor named Nate was praying for everyone at the movement. And I was the last one. It was finally my turn and he said "I want you to stand up." which I did and he wanted me to tell everyone my name. I was pretty emotional when it got to be my turn then he said "You've been through a lot this year which surgery and everything." And I nodded my head and was asked to talk about it. I grabbed the microphone and looked out and said "I have a genetic condition called Turner syndrome, It is where a girl is missing a chromosome, and it prevents them from developing properly." At this point I started balling like a baby. Nate asks everyone to come up and pray for me and everyone came which I thought was so amazing how these people supported me and was there for me.

HEY EVERYBODY!!!!

Hey everybody!!! Sorry I haven't blogged in a while. I thought that I would start to say that I went to the University Of Michigan last Wednesday and everything went great :D I got to talk about somethings with Kathy Clark. (who is a Pediatric nurse practitioner)
I have to go back to the UOFM in February.(6 months)
Also,I will make sure I keep the blog updated and again If anyone has anything about Turner syndrome or a story please feel free to contact me and I will be more then happy to post it on the blog.

YOUR INPUT!!!!

If you have any info or stories about Turner syndrome that you would like me to blog about please feel free to comment or email me at katecole@comcast.net I look foward to hearing from all of you :D

facebook page :D

I made a facebook group to spread awareness about Turner syndrome!!

www.facebook.com/#!/group.php?gid=135725666462840&ref=ts

Wear Lilac in support of Turner syndrome :D

I was invited to an event on facebook called "Wear lilac in support of Turner syndrome" which starts tomorrow so make sure you wear lilac (or at least purple :D ) in support of all of the Turner girls out there.

Adoptive mother and daughter bond

A beautiful story about a woman with Turner syndrome named Susan Jennings.
Susan and her husband always wanted to have children of their own and since Susan has Turner syndrome it is very difficult to conceive. so, Susan and her husband got put on a waiting list for a baby. A few months later Susan gets a call about a baby in New Orleans who has Turner Syndrome also.

TS growth chart

Here is a growth chart for Turner syndrome (picture from: www.kidsgrowth.com)

Twitter

Just made a twitter for Turner syndrome follow at www.twitter.com/turnersisters
I also have a personal twitter www.twitter.com/katejocole

Update!!!

It has been almost 4 weeks since my Laparoscopy and everything is going well. I have to go to Ann arbor next month for a post-op.
I have also started my hormonal treatments and that has been going pretty well too. Just believe in God and the power of prayer. :D
~Katie





Some pics of the University of Michigan hospital in Ann Arbor.

Dealing with Turner syndrome video

 

I found this video on the Turner syndrome society of the United states' website and I thought it was a great video about Turner girls at the mercy hospital in Kansas City, Missouri having a princess party and getting to know each other.
The video also includes a little feature on a seventh grader named Ally and how she got diagnosed.

2011 conference

The 2011 Turner syndrome conference will be held in Buffalo, New york in July. I hope I will be able to attend next year and everyone else as well I would love to meet all of my turner sisters :D

My story

It was a typical Wednesday morning, I went to school and my first block class aerobics(we go in the pool on wednesdays) My friends and I were waiting for class to start, then my friend mentions that her period had started and the whole group jumped into the conversation. except me. I told them that I never had a period before and they just looked at me stunned, saying "WHAT?" and "WHY?"
I could not answer their questions.
That day I got very concered and told my dad to call the doctor (Very awkard! haha but, he's my dad!!!)
The next day I went to the doctor and they sent me to the lab to get blood work done. A few days later the results were in....They said that my ovaries were not working properly and that I would have to go to a Gynecologist where they did MORE blood work.
A month went by without no answers, so I thought that everything was normal and they had nothing to call me about.
One day I was at the mall with my friend and her cousin when I get a call from my dad telling me that I had to go back to Dr. Terrell's office to get my results.
When that day came I got to leave school a little early and After waiting an hour!!! I finally got to go back. The nurse took me into this lavender purple room where I waited another 10-15 minutes until Dr.Terrell came in and said "Well...we did blood work on you," I was really nervous at this point. "And it looks like you have this thing called Turner syndrome."
he tells me about it and he health risks and what I might have to do, but one thing he said really struck me that it would be difficult for me to h children in the future. I was trying so...rd not to cry.
But,as of right now....Im healthy and im living a happy and normal life and I wouldn't have it any other way.

What is Turner syndrome??

Turner syndrome is a genetic condition that affects 1 out of 2,500 females.
Females with Turner syndrome do not have all of the sex chromosomes which preents them from developing properly.
Some symptoms of Turner syndrome include short stature, ovarian failure, low set ears, a low hairline, broad cheast and scoliosis.
There are also some health problems that come with Turner syndrome like heart, kidney, thyroid and ear problems.
(Information from Connect: A publication by the Turner syndrome society of the United States and Turner syndrome: a guide for families.)

I saw this and I thought it was so true!

2010 conference

I hope all of the wonderful ladies who attended the Turner syndrome conference in Indianapolis had the time of their lives :D I was not able to attend, but I want to hear about it from some of you.

First blog!!!

Hey everybody!!! welcome to my site decicated to all of my turner sisters out there :D I'll try to post as much as I can.

~Katie