facebook page :D

I made a facebook group to spread awareness about Turner syndrome!!

www.facebook.com/#!/group.php?gid=135725666462840&ref=ts

Wear Lilac in support of Turner syndrome :D

I was invited to an event on facebook called "Wear lilac in support of Turner syndrome" which starts tomorrow so make sure you wear lilac (or at least purple :D ) in support of all of the Turner girls out there.

Adoptive mother and daughter bond

A beautiful story about a woman with Turner syndrome named Susan Jennings.
Susan and her husband always wanted to have children of their own and since Susan has Turner syndrome it is very difficult to conceive. so, Susan and her husband got put on a waiting list for a baby. A few months later Susan gets a call about a baby in New Orleans who has Turner Syndrome also.

TS growth chart

Here is a growth chart for Turner syndrome (picture from: www.kidsgrowth.com)

Twitter

Just made a twitter for Turner syndrome follow at www.twitter.com/turnersisters
I also have a personal twitter www.twitter.com/katejocole

Update!!!

It has been almost 4 weeks since my Laparoscopy and everything is going well. I have to go to Ann arbor next month for a post-op.
I have also started my hormonal treatments and that has been going pretty well too. Just believe in God and the power of prayer. :D
~Katie





Some pics of the University of Michigan hospital in Ann Arbor.

Dealing with Turner syndrome video

 

I found this video on the Turner syndrome society of the United states' website and I thought it was a great video about Turner girls at the mercy hospital in Kansas City, Missouri having a princess party and getting to know each other.
The video also includes a little feature on a seventh grader named Ally and how she got diagnosed.

2011 conference

The 2011 Turner syndrome conference will be held in Buffalo, New york in July. I hope I will be able to attend next year and everyone else as well I would love to meet all of my turner sisters :D

My story

It was a typical Wednesday morning, I went to school and my first block class aerobics(we go in the pool on wednesdays) My friends and I were waiting for class to start, then my friend mentions that her period had started and the whole group jumped into the conversation. except me. I told them that I never had a period before and they just looked at me stunned, saying "WHAT?" and "WHY?"
I could not answer their questions.
That day I got very concered and told my dad to call the doctor (Very awkard! haha but, he's my dad!!!)
The next day I went to the doctor and they sent me to the lab to get blood work done. A few days later the results were in....They said that my ovaries were not working properly and that I would have to go to a Gynecologist where they did MORE blood work.
A month went by without no answers, so I thought that everything was normal and they had nothing to call me about.
One day I was at the mall with my friend and her cousin when I get a call from my dad telling me that I had to go back to Dr. Terrell's office to get my results.
When that day came I got to leave school a little early and After waiting an hour!!! I finally got to go back. The nurse took me into this lavender purple room where I waited another 10-15 minutes until Dr.Terrell came in and said "Well...we did blood work on you," I was really nervous at this point. "And it looks like you have this thing called Turner syndrome."
he tells me about it and he health risks and what I might have to do, but one thing he said really struck me that it would be difficult for me to h children in the future. I was trying so...rd not to cry.
But,as of right now....Im healthy and im living a happy and normal life and I wouldn't have it any other way.

What is Turner syndrome??

Turner syndrome is a genetic condition that affects 1 out of 2,500 females.
Females with Turner syndrome do not have all of the sex chromosomes which preents them from developing properly.
Some symptoms of Turner syndrome include short stature, ovarian failure, low set ears, a low hairline, broad cheast and scoliosis.
There are also some health problems that come with Turner syndrome like heart, kidney, thyroid and ear problems.
(Information from Connect: A publication by the Turner syndrome society of the United States and Turner syndrome: a guide for families.)

I saw this and I thought it was so true!

2010 conference

I hope all of the wonderful ladies who attended the Turner syndrome conference in Indianapolis had the time of their lives :D I was not able to attend, but I want to hear about it from some of you.

First blog!!!

Hey everybody!!! welcome to my site decicated to all of my turner sisters out there :D I'll try to post as much as I can.

~Katie